Alliance of PKU Families
The Maryland Alliance of PKU Families was started in 1994 by parents of children that have PKU to promote the health and well-being of persons with PKU. The inaugural event, Camp Huber for people with PKU and their families/support persons, combined educational experiences with networking and entertainment, where PKU food was on the menu and no explanations of diet were needed.
Over the years, MAPKUF expanded their goals and reach, now hosting several events throughout the year, and engaging about 100 people from across the Mid-Atlantic (and sometimes further). MAPKUF works to make camp, and the other events, affordable to all families that already struggle with high costs of insurance, medical food, formula, and medication, to ensure they are part of the MAPKUF community.